Emerging Worlds: Chronic Illness and Viral Infections














   
Welcome to the Children's Corner

The Children's Corner contains a collection of articles that we found valuable when considering your children's health as it relates to chronic infectious disease. We believe our children have the right to grow up in a world that is free of pollution, food additives, harmful medicines, tainted vaccines, and violence. What we decide now as a culture about what is appropriate treatment for childhood infectious diseases will effect generations to come.

The children's corner includes information on ADHD, chronic fatigue syndrome in children, vaccine issues, allergic reactions from medicines, issues of mental health, environmental concerns, household products and much more. We are constantly updating this section with new articles. You will want to return often to explore what is new or you can sign up for our e-mail notification service.

As Kahlil Gibran wrote in The Prophet:

Your children are not your children, They are the sons and daughters of Life's longing for itself,

They come through you but not from you,

And though they are with you yet they belong not to you.

You may give them your love but not your thoughts,

For they have their own thoughts.

You may house their bodies but not their souls,

For their souls dwell in the house of tomorrow, which you cannot visit, not even in your dreams.

You may strive to be like them, but seek not to make them like you,

For life goes not backward nor tarries with yesterday...

 
 
NEW $9 MILLION CENTER AT UC DAVIS TO STUDY ROLE OF ENVIRONMENT ON AUTISM
The UC Davis M.I.N.D. Institute
FOR IMMEDIATE RELEASE:Oct. 25, 2001 UC Davis Health System Medical Center School Of Medicine


(SACRAMENTO, Calif.) --The UC Davis M.I.N.D. Institute, Schools of Medicine and Veterinary Medicine, and the College of Agricultural and Environmental Sciences will jointly establish a research center that will, for the first time, study the possible role that environmental contaminants, such as pesticides, polychlorinated biphenyls (pcbs) and heavy metals, play in the development of autism. The UC Davis Center for Children's Environmental Health and Disease Prevention Research is being created under a $5 million, five-year grant from the National Institute of Environmental Health Sciences. The M.I.N.D. Institute and UC Davis are providing another $4 million in funds over the next five years. "A child's nervous and immune systems undergo immense remodeling during the first two years of life," said Isaac Pessah, professor of molecular biosciences at the UC Davis School of Veterinary Medicine and principal investigator for the new research center. "Environmental exposure to mercury, pesticides and other contaminants during early childhood development could easily alter the normal function of a child's systems. If we find they do, we can then develop rational strategies for treatment and we can work towards preventing exposure to those poisons."

 
Understanding Autism
By Geoffrey Cowley
NEWSWEEK July 30th, 2000


More kids than ever are facing the challenge of ëmindblindness.í The causes are still a mystery, but research is offering new clues to how the brain works.

Mysterious Combination: autistic tendencies in twins may shed light on autism's causes

HE TOOK UP screaming instead of sleeping at night, and almost any sensory stimulation, even the touch of clothing against his skin, seemed to upset him. Russell’s mother, Janna, remembers carrying him upstairs for a bath one night when he was 20 months old. When she called him her baby boy, he said, “I not a baby—I a big boy!” It was the last full sentence he ever spoke.

In the years since, Janna and her husband, Rik, have tried everything short of witchcraft to get their child back. Russell follows a special diet and takes dozens of supplements each day. He’s had speech therapy and behavioral therapy and made his way into special-ed classes at a local elementary school. His parents are thrilled by his progress—”Any little improvement is a victory,” Janna says. But drop in as Russell gets home from school, and you see what the family is up against. Pushing the door open, he flaps his arms and makes a guttural sound before accepting a hug from each parent. He doesn’t seem to notice the stranger in the room until his mom urges him to say hello. He honors the request, yet his clear blue eyes reveal no hint of engagement. “He tests in the normal range for intelligence,” his dad says. “But he can’t tell me how his day was, or what hurts.” “Any little improvement is a victory,” — JANNA

 
What is Aspergers Syndrome? A More Down-to-Earth Description
by Lois Freisleben-Cook.
NOTE:(This was originally a post to the bit.listserv.autism newsgroup/listserv)


I saw that someone posted the DSM IV criteria for Asperger's but I thought it might be good to provide a more down to earth description. Asperger's Syndrome is a term used when a child or adult has some features of autism but may not have the full blown clinical picture. There is some disagreement about where it fits in the PDD spectrum. A few people with Asperger's syndrome are very successful and until recently were not diagnosed with anything but were seen as brilliant, eccentric, absent minded, socially inept, and a little awkward physically.

Although the criteria state no significant delay in the development of language milestones, what you might see is a "different" way of using language. A child may have a wonderful vocabulary and even demonstrate hyperlexia but not truly understand the nuances of language and have difficulty with language pragmatics. Social pragmatics also tend be weak, leading the person to appear to be walking to the beat of a "different drum". Motor dyspraxia can be reflected in a tendency to be clumsy.

 
The Youngest Victims:Anthrax May Affect Children Differently Than Adults
By Alexa Pozniak
ABC NEWS .com B O S T O N, Oct. 17, 2001


New questions have been raised about how anthrax affects children, after the disease was diagnosed Monday in the 7-month-old boy of an ABCNEWS employee

The symptoms of infection with the bacterium in children older than 2 months are virtually identical to those in adults. The disease begins with warning signs that look like a viral respiratory illness, including fever, cough and body aches. Despite the similarities, one expert says there is a "world of difference" in the rate at which the disease is contracted and how it is treated. "Biological and chemical agents enter a child's body more rapidly than an adult's because their nose is closer to the ground, and the rate at which they breathe is faster," says Dr. Irwin Redlener, head of New York's Children's Hospital at Montefiore and the nonprofit Children's Health Fund.

Experts caution parents, though, not to overreact at the onset of such symptoms, which can be caused by a virus. B O S T O N, Oct. 17 — New questions have been raised about how anthrax affects children, after the disease was diagnosed Monday in the 7-month-old boy of an ABCNEWS employee The symptoms of infection with the bacterium in children older than 2 months are virtually identical to those in adults. The disease begins with warning signs that look like a viral respiratory illness, including fever, cough and body aches.

 
The Brain - Thinking Differently
By Adam Rogers


EVEN IN A CLASSROOM OF 30 preteens, it's not hard to spot the one with problems. He's staring out the window instead of listening, or tearing around the room instead of finishing that art project. But is he merely rambunctious, or is he one of the estimated 2 million children in the United States with attention deficit hyperactivity disorder? The question isn't just academic - kids thought to have ADHD usually are prescribed the drug methylphenidate, better known as Ritalin. It's effective for genuine ADHD cases, but diagnosing the disorder calls for artful - and sometimes inexact - psychology. Parents and doctors can't always be sure if the drug is over prescribed, if children who might need counseling are getting Ritalin instead. A study in the Nov. 24 Proceedings of the National Academy of Sciences may change that. By showing differences in the brains of ADHD boys, a team of researchers at Stanford may pave the way to more certain diagnoses of the disorder.

 
Bay Area Tot Killed By Rare Amoeba - Doctors Mystified
Chuck Squatriglia, Pamela J. Podger, and Matthew Taylo-Chronicle Staff Writers,
San Francisco Chronicle, April 20, 2001


A 3-year-old Rohnert Park girl died after being infected with a rare organism that destroyed her brain as she lay in a coma for two days, it was revealed yesterday. Just how Aletha Leigh Willis contracted amoeba Balamuthia, which is so unusual scientists discovered it only 11 years ago, remained a mystery last night. Doctors and health officials are scrambling to answer that question.

 
Childhood-cancer survivors learn the cost of a cure
By Susan FitzGerald
Knight Ridder Newspapers - July 08, 2001


PHILADELPHIA - Barbara Lee was 15 the first time she was diagnosed with cancer. She had been sitting in class one day when a friend noticed a bulge in her upper left arm. It turned out to be a type of bone tumor called Ewing's sarcoma. The cancer can be a tough one to beat, but Lee was lucky and fared well with a regimen of chemotherapy and radiation therapy. By 17, the ordeal was behind her and she was on with life - college, a nursing career, marriage, a baby.

Lee was 37 the second time she was diagnosed with cancer. This time it was breast cancer. "I'm more scared this time around because the stakes are higher: Now I'm 37 and a mother and a wife," recalled Lee, 41, who grew up in Wilmington, Del., and now lives in Montclair, Va. As it happened, the radiation treatment that Lee got the first time around probably led to her second cancer.

One of medicine's biggest success stories has been the conquering of many childhood cancers. More than 250,000 children, teens and adults in the United States have survived cancer, and today nearly 75 percent of children can expect to beat their disease, up from 25 percent 30 years ago. But now some survivors are beginning to see the delayed effects of the very treatments that cured them.

 
Law Firms Across U.S. Sue Drug Companies Over Mercury Traces In Vaccines
By William McCall The Associated Press
The Seattle Times 10-03-01


PORTLAND — A coalition of law firms went to court across the nation yesterday, trying to force the pharmaceutical industry to study whether vaccines containing a trace of mercury cause autism and other brain damage in young children. The lawsuits were filed as class actions and led by an Oregon woman who says her 3-year-old son, William, became autistic after getting vaccinations containing mercury in a preservative, thimerosal. "We had a happy, healthy little boy until that last set of shots," Tory Mead said. "It's been devastating. Our lives have been shattered."

 
Vaccine, Surge in Autism Unrelated, Study Says
Thomas H. Maugh II, Times Medical Writer
LA Times Wednesday, March 7, 2001 |


The controversial idea that the dramatic upsurge in autism over the last two decades was caused by the measles-mumps-rubella vaccine--a concept embraced by many parents--is wrong, according to a new report released today by the California Department of Health Services. The new study, like two others recently conducted in England and Finland, found that the rate of autism has been rising dramatically as the number of children vaccinated has remained virtually constant... "I don't know why anyone would believe information that comes out of a branch whose sole purpose is to promote immunization in California," said Rick Rollens, a parent advocate who was instrumental in creating the MIND Institute for researching autism at UC Davis. The studies in England and Finland are equally questionable, he added, because vaccine makers funded them.

 
Study Addresses Schizophrenia Link
AP Medical Writer
LA Times Thursday April 12, 2001


CHICAGO--Older fathers are much more likely than younger ones to have children with schizophrenia, a study suggests, adding mental illness to the list of diseases linked with advancing paternal age. While previous research has suggested children of older fathers are at risk for certain cancers and birth defects, the study is the first to make the link with a psychiatric illness, said Dr. Dolores Malaspina of Columbia University and the New York State Psychiatric Institute. In the study, men who fathered children at ages 45 to 49 were twice as likely as those under 25 to have schizophrenic children, and men 50 and older were three times more likely. The researchers, led by Malaspina, reviewed data on 87,907 people born in Jerusalem from 1964 to 1976. Their findings appear in April's Archives of General Psychiatry. "I would guess that our study is just the tip of the iceberg," said co-authorDr. Susan Harlap of New York University School of Medicine. "Eventually it would seem that the father's sperm is going to turn out to be just as important as the mother's egg."

 
Report of the Surgeon General's Conference on Children and Mental Illness

A National Action Agenda


In the United States, 1 in 10 children and adolescents suffer from mental illness severe enough to cause some level of impairment. Yet, in any given year, it is estimated that fewer than 1 in 5 of these children receives needed treatment. The long-term consequences of untreated childhood disorders are costly, in both human and fiscal terms.

 
ADHD And Diet
By Michael Jacobson
Mothering Magazine


In the early 1970s, Dr. Benjamin Feingold, then chief emeritus of the Department of Allergy at the Kaiser Foundation Hospital and Permanente Medical Group in San Francisco, reported a link between diet and several physical and allergic conditions. Thirty to 50 percent of Feingold's hyperactive patients said they benefited from diets free of artificial colorings and flavorings, and certain natural chemicals (salicylates, found in apricots, berries, tomatoes, and other foods).

Parents wishing to test their children's response to diet will seek to identify and remove irritants in foods (and other products) that cause behavioral symptoms. This is done by eliminating certain foods (and vitamins and drugs) from the (unmedicated) child's diet for several weeks to see if his or her behavior is improved. In some cases, dietary changes by themselves may adequately reduce behavioral problems. If not, amphetamines or another medication could be tried in addition to, or instead of, a restricted diet. The goal is to identify the specific foods or additives, if any, that affect your child.

 
Schools Hit by ME/CFS Plague
By Jane Colby
The Guardian, London UK


On the morning of May 22 1997, the new Prime Minister of Great Britain shared the front page of one of the UK's most respected national newspapers with the statistics of ME/CFS in UK schools. Published in the Journal of Chronic Fatigue Syndrome, our paper revealed that between 1991 and 1995, ME/CFS caused over half of all long-term sickness absence in the studied student population. Just how big the story would get, no-one could have predicted. On national television it had top billing. The full media circus continued for days and the spin-off has been the creation of greater awareness of ME/CFS in children throughout the UK than anyone here can remember. In November '97 the charity Action for ME, for whom I now work as Children's Officer funded by the BBC Children in Need Appeal, held the first national conference for educational professionals on the needs of children with ME/CFS. It was attended by almost 200 delegates including government representatives from the Department for Education and Employment, Educational Psychologists, Education Officers, Hospital and Home Education Co-ordinators and Tutors, and Educational Welfare Officers.

 
Report Questions Seafood Mercury Levels for Pregnancy
By Robert Schlesinger
Globe Staff, 4/13/2001


WASHINGTON - Recently issued government guidelines are inadequate to protect fetuses and newborn babies from the harmful effects of mercury in seafood, according to a report released yesterday by a pair of advocacy groups.

The study by the Environmental Working Group and the US Public Interest Research Group concludes that as many as one in four pregnant women could endanger the long-term development of their children if they follow the dietary guidelines issued by the Food and Drug Administration at the start of this year. The groups also identify 13 fish that pregnant women should not eat - three times the number currently identified by the government. The report, which drew criticism from the government and from food processors, was also critical of federal and state government monitoring of mercury in fish. The study cited Massachusetts as one of two states with sufficient notifications in place regarding mercury levels in fish. ''If American women ate this varied diet of FDA's recommended 12 ounces of fish per week, more than one-quarter of all pregnancies every year, or about a million pregnancies, would be exposed to potentially harmful levels of methyl mercury for over a month of the pregnancy,'' said Jane Houlihan, the Environmental Working Group's research director.

 
Thousands of kids help test new drugs
By Sheryl Stolberg
The New York Times


WASHINGTON - Children and adolescents, who were once routinely left out of pharmaceutical research, are now being enrolled by the thousands into drug-company experiments, a trend that is both transforming the care of sick children and generating uneasiness among pediatricians, ethicists and parents. The federal government is the driving force behind the change. Pressed by advocates for pediatric AIDS patients, Congress in 1997 offered pharmaceutical manufacturers lucrative incentives to include children in their studies. And in December, the Food and Drug Administration began requiring companies to test almost all new medicines on young people.